Read the latest newsletter here [1]. In this edition we report on news from partners of the Frailomic Initiative and MID-Frail study. This newsletter also provides a project status update for both studies and a list of upcoming conferences. After a busy period for MIDFrail, the Screening and Baseline visits have been completed and all the data have been monitored.
We provide an update on the shipment of biobank samples to the laboratories for the Frailomic Initiative. Both projects are entering exciting phases both looking forward to finishing the next series of MID-Frail patient visits and obtaining results first sample assays in the Frailomic Initiative.
The path to establishing a complete, sharable version of the Frailomic data – including data harmonisation and database preparation across the cohorts – was long and required a considerable effort from numerous partners. Thank you to everyone involved! Finally, the system is ready and working however, not everyone is aware of the process you need to follow to access the data. We would like to take this opportunity to provide some information and guidelines in this edition of the newsletter.
The Niche Clinical Research Associate, Alannah Symth, describes her travels to the many MID-Frail centres across Europe during her monitoring activities and the opportunity it provided to meet members of the team and experience the camaraderie we have built over our years of collaboration.
As our projects have matured our thoughts have turned to ensuring their legacy. It’s been an extremely productive period for both the Frailomic and MID-Frail Initiative in terms of publications. The first half of 2016 has been an exciting time for partners of the Frailomic Initiative, in particular – with progress having been achieved with several publications. Details can be found in our newsletters and on the project websites [2,3]. Beyond achieving the initial goals we have all been excitement by the way our initial publication plan has expanded to become a multi-channel communication strategy encompassing a broad range of message vehicle types helping us win share of voice in an active research field.
References
Have you seen our latest Insider's Insight on Case Reports? Once a staple of medical journals,
When I was younger, the opening lines of the Beatle’s seminal ‘Sgt. Pepper’s Lonely Hearts Club Band’ resonated.
Experience at Niche has taught us that clinical study protocols are born in the white-hot fire
Every year, a huge amount of scientific data is released. It's out there, but how do you find it?
Advisory board meetings are often used to address perceived knowledge gaps and build consensus.
It was encouraging to see so many partners at the 2017 General Assembly meeting last December
Investigator sites are very important to clinical studies because they make sure that new drugs are safe and work well.
Rational Vaccines (RVx) announces MHRA Innovation Licensing and Access Pathway (ILAP) approval for their live attenuated.
I am shamelessly referencing our Insider’s Insights (IIs) to Dr Who’s TARDIS – our latest edition
Frights create a happy Halloween by providing the thrill of fear in a controlled and safe environment, turning what.
Welcome to the seventh issue of the Refractory Asthma Stratification Programme (RASP-UK) newsletter
Investigator-Initiated Clinical Trials (IITs) are clinical studies led by academic researchers or clinicians
The clinical stage biotechnology company developing breakthrough therapies for patients suffering with cancer,
The proceedings of the Association for Human Pharmacology in the Pharmaceutical Industry (AHPPI)
Concerns about readiness of the European Medicines Agency’s (EMA) Clinical Trials Information System persist as the.
The largest pharmaceutical companies not surprisingly rely on the largest contract research organizations
The UK's world-class human challenge study gives us new information about SARS-CoV-2 cases that were mild in 36 healthy.
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